Tuesday, March 19, 2013

Out of the hospital!

So today is the first full day that we are discharged. Unfortunately we are here back at the hospital getting labs done. She is not very excited to be back but this is the whole reason for staying local! She also has to get a shot today which I haven't explained to her because I know the anxiety she will get. So I am waiting till the very last minute to tell her! At least it is only one shot instead of being a daily thing.

She is doing great so far out of the hospital. We ended up getting a room at the Ronald McDonald house which turned out to be pretty cool. Jillian really likes it there and that's what matters. We Re currently in the stem cell part of the house which is a completely different building from the main house. Our room has a lot more amenities than most of the regular rooms because the children that normally stay in these rooms cannot leave very often. Their immune systems are very compromised so they make their rooms more comfortable. We have two beds a bathroom and a whole kitchen area. It's very convenient for us right how but they may move us if another family needs to be in that area of the house. This is because we are not stem cell patients but because the rest of the house was full and we are oncology they gave us this room as of now. So were happy! The house is really nice as well. There is so much for Jillian to do and kids to play with. We actually went to the play area yesterday and she made Easter eggs. I know she will have a lot of fun there but she is still pretty home sick. And to be honest so I am!! But we will get through this.

As far as chemo goes we are done for this month. She takes her regular experimental drug everyday still and her anti fungal medicine through her port but that is it. We are not scheduled for anymore inpatient stuff for a few weeks. So now it will just be Jill and I up here waiting for the next phase to start and trying to entertain ourselves!

We have a new address now for where we are so if anyone is planning on sending her anything just hold off for a bit and I will post her new address later today. I already told the people at the hospital that we are expecting some stuff so if you have already sent anything we will still get it! Thanks everyone. Jill's doing great. The people at Ronald McDonald yesterday didn't even believe she was the patient! That's how good she looks. :-)



1 comment:

  1. Rosemary,
    She looks great. Hang in there. You are doing a great job & being very patient. I'm glad she's having fun at Ronald McDonald House. It looks like fun! Pls tell her Ms. Sheere says "Hello and I love you!"

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