Exhaustion is a small way of describing these last few weeks. I have not had the energy to blog. I barely have the energy to take on my daily tasks. Jillian is doing very well this phase. We just finished block 2 of consolidation and it really kicked her butt. Block one was difficult with mouth sores, leg pain and tons of hair loss! Block 2 consists of new meds and new symptoms. We finished up block 2 on Monday night. We got to come home for a few days on Tuesday but was right back up to Stanford Thursday night to the ER. Jill ended up with a really bad sore (diaper rash if you will) on her butt. The sore was completely raw and bled, along with the sore her numbers dropped because of the chemo which made the sore a hundred times worse because it is a huge spot for infection. Whenever she poops she runs the risk of poop infecting her sore. Because of this my mom and I decided to bring her up to Stanford and get her admitted for antibiotics to prevent any type of infection she could get. So that's where we are now inpatient. She's doing amazing today. Her butt is clearing up and some other symptoms she had are also getting better. She is currently on oxycodon to help with any pain from her past chemo and all her sores. It really helps her throughout the day. Every time she takes it she goes back to being herself and its so nice to see. It's hard to see her in so much pain!
My sister was able to come up and stay most the time for Jill's block 2 phase. It was awesome to have her here to help. She was truly amazing to have and I can't thank her enough for all the support and help! Thank you sister, I hope you can come and help again soon!
I got lucky to be able to have my mom up with us this week. We are hoping to get out of the hospital so we can have a little fun around palo alto before we have to go back inpatient for her last block. If her butt clears up some more and her numbers go up then we can. So send those prayers.!
We received some more donations to Jill. Thank you to everyone who has donated and sent things to Jill. Please know how much we appreciate everything and if I don't get a chance to personally thank you it's because I have so much going on, but we are receiving everything and are so grateful! I will update the donor lost as soon as possible. I hope everyone is well. I apologize for taking so long to update everyone. It's just been a tough tough time. But know Jill is still doing great and is responding to chemo so well. Her hair is almost all gone now but she is still happy and oh so beautiful!
