We are still here in Stanford getting Jillian's first dose of chemo for her second phase. I was unaware how long this dose would be so we probably will not be leaving till late. She has to get a lot of fluids along with the chemo so that's why it will be a longer day. This chemo is given on the first and last day of this phase. I'm glad we have company though!
We spoke with the doctor about her results on remission and she told us that Jillian is indeed in remission! How amazing it is to get these results. All her numbers went up this week as well. Even her hemoglobin so no transfusion for her. I can't believe how amazingly well Jillian is doing. Her ANC went up to 1700 so thats great too! Since we are now in remission it is our job to keep her this way. I have heard of children who have never relapsed from their first remission and it is my goal to make sure Jillian is one of those children! Her cancer will be gone for good and will never return. This phase of chemo looks like it will be an easier 28 days. She will still remain on dasatnib and I will also be giving her another chemo once a day for the month. She stays on septra for the weekends and there is a new drug they will have me administer at home. Four days a week I will have to poke her which I'm not super looking forward to but we will manage. The chemo she will be on for the month requires her to take on an empty stomach and he can't eat anything for an hour after. I think I'm looking forward to that medication less than poking her. She loves to eat and even though she is not on her steroids anymore she still has a healthy appetite. So it will be fun telling her she can't eat so I can give her her meds.
We come back to Stanford on Monday for a lumbar puncture to give her some chemo in her spine. It's a normal scheduled procedure but I was unaware we would have to be back so soon! No big deal but it will be another long drive. So far Jillian is doing awesome. Her central line is looking great and the doctor says everything is perfect! Thanks for all your prayers!
Don't forget that Jillian's rummage sale fundraiser is going on tomorrow at tantrum fitness in Grover beach. If anyone has anything they want to donate they can bring it to tantrum fitness or they can go shopping tomorrow! Thanks everyone!
Here's Jillian today getting her chemo and with her new bear Cinderella. She's such a trooper!