We're here and we are doing great!!! So sorry for the lonnnnng break but its just been an exhausting few weeks. Jill and I are currently at the Ronald McDonald house waiting for her numbers to go up so we can go home. This was her last inpatient chemo and she rocked it! No mouth sores, butt sores, hand sores or any sores of any kind as of now! This last block was a bit easier than the first two so we are being optimistic that she will remain in good health. She's doing so very fantastic!
We found out a few weeks ago that William is indeed a match for Jillian if we ever need to do a bone marrow transplant. We were ecstatic to hear this since William is her only sibling. We had to put all our chips on him since we had no other choice right now. He pulled through and is a great match for her. So if things start going in the other direction and she looks like she needs a transplant then we have our donor. Such an amazing thing he can do for her! But as of right now she is doing so utterly amazing that a transplant is no where in the future, especially if she continues the way she is. We could not be an happier with how she is doing. The doctors couldn't be any happier as well! Yay for Jill.
She celebrated her fifth birthday on the 20th an was able to be home for it. She had such a great time at her party. Thank you to everyone who came to celebrate with us. You made her day so awesome. Ill post pics of her fun day.
As far as Jillian goes she's still losing weight. We have been speaking with the hospitals nutritionist about how to keep her maintaining the weight she is at and to put some more weight on her. She's dropped about 8 pounds since she got diagnosed. Which doesn't sound like a lot but on her it is. Plus she needs to keep up as much strength as she can through all this. So we are trying to get her to eat higher calorie foods and more of them. During the weeks she gets chemo she has a really hard time eating and usually drops weight so it's hard then. But she usually starts eating better once we leave the hospital. She already is now. So that's great!
She's still holding on to some of her hair. It's super thinned now and you can see many bald spots. She barely has any left but I am able to put it in a pony tail still so that's good. I was thinking this last block would do the trick but as of right now we are not seeing any loss. She's still happy with her hair too.
Since this is the last inpatient chemo that we will have (unless there is a relapse, which there won't be!) we are now getting into the next phase once she count recovers from this one and has a little brake. We will be coming into re induction 1 which is lots of outpatient chemo which I'm hoping we will be able to do locally. Fingers crossed! This drive up to Stanford weekly is starting to get exhausting so if our docs will let us get most of our chemo done at home then that would be so much better! The doctors said that this phase isn't supposed to suppress her numbers that much, to the point where she shouldn't be nuetropenic that often. So it's possible to live a semi normal life. She wants to get back into dance class which I'm hoping the doctors will be ok with. It's been an exhausting few months so I hope the next are easy. We need some easy ones. So unless Jillian gets sick and a fever then we should be done staying the night at the hospital! So send those prayers that we can keep her healthy. Thanks to everyone for being patient with me. Just know Jill is doing so good. All your prayers are working!!
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