Her mood is great still. The last week has been just a waiting game in numbers so she's been very active in the room. Since she's in isolation she can't leave the room which is harder for me I think, but I have been keeping her entertained with activities and games. I didn't come as prepared as I normally do because this stay was so unexpected and we were ambulanced up. But we are managing with what we have!
We are waiting to start re-induction 1b which consists of regular weekly chemo and a lumbare puncture that we will hopefully get done by the end of this week. She's still doing great with her chemo and still has managed to hold in to some of her hair. It's bizarre to see how far we have come and how well she is doing. We couldn't be happier!
We have been at this for almost 8 months now. It's a little like what I expected but also so much different since I didn't really know what to expect. Being inpatient can be so depressing at times too. You can really tell the parents who are new diagnoses and I feel so bad for them. Even though its been only 8 months I feel like such a veteran when it comes to leukemia. I want to tell them that it gets easier and better but you can never predict that. We are just so lucky that Jillian is doing as well as she is. But at any time she could turn a corner and things can change so fast. I am always so grateful for her progress right now but can never rest easy. We have done the calculations and if her treatment continues to go on without any interruptions then we should be in maintenance on November 4th. Seems is long away but to be honest these last 8 months flew by! So keep those prayers coming. We need to make counts ASAP so we can start her back up on chemo. No more waiting game!! Thanks for being patient with me everyone! Hope you are all well.
